PORTLAND, Ore. — A big milestone for a baby from Eugene who’s been battling a rare immunodeficiency syndrome known as “Bubble Boy Disease” happened Tuesday. Baby Harlow underwent a bone marrow transplant in January and after months between hospitals Baby Harlow and her family finally left that evening.
KEZI has been following Harlow’s journey since the search began for a match for a bone marrow transplant at the end of 2013 and it hasn’t been an easy process. Her mom, Somer Deck, says she had some serious complications following the transplant and so Tuesday’s move is a huge step and they’re looking forward to moving out.
Deck says, “We’re ready to go outside. Harlow and I have not been outside in about 69 days I believe, so that’s going to be a big moment in and of itself. We’re just very grateful for where we are today versus where we were three months ago.”
The family won’t be able to return home to Eugene, just yet. Harlow’s immune system is regenerating, but she is on immuno-suppressants, so her body doesn’t reject the transplant and they need to be nearby for regular check-ups.
Harlow’s family says they are so grateful for the outpouring of community support. There are still Baby Harlow bracelets for sale at Dandelion’s Flowers in Eugene and at the Umpqua Bank on Oakway Road.