EUGENE, Ore. — Despite low odds, a Eugene family found a bone marrow match for their baby, and now Baby Harlow begins the difficult road to recovery.
Harlow Grace Powers suffers from a rare immunodeficiency syndrome also known as the “Bubble Boy” disease.
Even though most of Harlow’s time right now is spent in a hospital room, like any normal almost-7-month-old child, she’s hitting her milestones; growing bigger every day, trying to sit up, and even trying to talk.
She was active during a Skype interview we did with her and her mom a day after she received a bone marrow transplant.
Doctors found Harlow’s match through cord blood.
The transplant is a simple procedure, but it’s vulnerable to complications.
“It was a little bit scary,” said Somer Deck, Harlow’s mom. “She had her blood pressure spike, so they just had to monitor her and give her some medications.”
It’s been a long process, but Deck says Harlow’s health is about to get worse before it gets better.
Until her new cells start taking to her body and growing, there’s a long road ahead before she’s a fully healthy girl.
Harlow’s parents are staying optimistic that it’s nothing she can’t handle.
“It’s amazing to me that she can go through so much and still wake up in the morning with a smile on her face,” said Deck.
Harlow will still be checking in with doctors regularly and probably won’t be back home until mid-April.
Harlow’s mom hopes her daughter’s story will continue to inspire people to sign up to be on a donor registry.