«

»

Family Seeking Bone Marrow Donor

video preview image

EUGENE, Ore. —  A Eugene family is hoping there’s someone in our area who’s a match to help save their daughter’s life.

The family’s five-and-a-half month old daughter needs a bone marrow transplant.

Harlow Grace Powers suffers from a rare immunodeficiency syndrome also known as the Bubble Boy Disease.

Her family only found out about the diagnosis a couple of weeks ago.

Harlow’s mom, Somer Deck, says a bone marrow transplant at this point is the only option.

“To hear someone tell you that you could lose your child is I think understandably one of the hardest things you’ll ever have to hear and so it’s been tough,” said Deck. “One in every 100,000 babies are born with it,” added Deck.

To help find Harlow’s match, a bone marrow drive is planned for Wednesday from 4:00 p.m. to 7:00 p.m. at the Umpqua Bank on Oakway Road.

Organizers say all you need to do is show up, fill out some paperwork and a cheek swab will be taken of your DNA.

You need to be between 18 and 44 and you are then entered into the worldwide database.

“I would just ask people to imagine it being your daughter, your sister, your best friend’s baby. It’s vital that they find a bone marrow donor,” said bone marrow driver organizer Leah Hyland.

The marrow tests go to the international registry Be The Match. Since its creation in 1987, Be The Match has facilitated more than 55,000 marrow and cord blood transplants for patients who do not have matching donors in their families. Being a match is rare too.

Be the Match says 1 in every 540 people on the registry will go on to donate marrow to a patient.

Baby Harlow’s family is hoping this Christmas the odds are in her favor.

“The goal is finding a match for Harlow,” said Hyland. “The beauty is its national, so somebody at the event could potentially save not only Harlow’s life, but millions of others on the registry awaiting a bone marrow transplant.”

“I call them Harlow’s warriors fighting. They are fighting for her and us, it’s amazing,” said Deck.

Be The Match says if you are a match, 75 percent of the time the donation is a non-surgical procedure similar to donating platelets or plasma.

About 25 percent of the time a surgical outpatient procedure takes place.

For more information on donating bone marrow, click here.

13 comments

No ping yet

  1. Dallas says:

    Hi there,
    What if we have already went through the process and beginning steps of donating to another person but a better match was found just prior to the donation? Is there anyway to be tests for this particular donation?
    Dallas

  2. T says:

    Is there a reason why you have to be between 18 and 44? I’m almost 49 and would like to be tested…. ???

    1. Jennifer Richardson says:

      Here is the explanation from Be The Match.

      We are committed to providing the best possible outcome for patients. We encourage people between the ages of 18 and 44 to join Be The Match Registry®online or at a community donor drive for free. People between the ages of 18 and 44 are selected as a donor by physicians over 90% of the time.

      Those between the ages of 45 and 60 who want to join Be The Match Registry® are welcome to do so, but must join through our online registration process. You will be required to make a $100 payment at the end of the online process to cover the cost to join.

  3. Sabrina says:

    If you cannot make it to the 4pm-7pm session, is there another place we can go to be tested to see if we are a match?

    1. Jennifer Richardson says:

      They are getting more tests and we believe will have them again by Monday.

  4. Traci Abbott says:

    I’m curious…I live in Seattle and can’t make it down for the testing…is there a way I could test from up here?

    1. Jennifer Richardson says:

      You can order a kit. The registry is an international one.
      http://bethematch.org/About-Us/

  5. rsouth says:

    Hi, I am unable to make it tonight but is there some other way I can check or donate? What blood type is needed? I have donated blood to Lane Blood Center and my blood type is O+

    1. Jennifer Richardson says:

      Here is more info on being a donor.
      http://bethematch.org/About-Us/

  6. Rachel says:

    Was there a match found on Wed? I would like to see If I am a match if one has not been found

    1. Jennifer Richardson says:

      It is a lengthy process and will take awhile but we will definitely keep updating the story.

  7. Vickie says:

    I’m 46 but would love to be tested, why is there an age limit.

    1. Jennifer Richardson says:

      This is the website of Be The Match.
      We are committed to providing the best possible outcome for patients. We encourage people between the ages of 18 and 44 to join Be The Match Registry®online or at a community donor drive for free. People between the ages of 18 and 44 are selected as a donor by physicians over 90% of the time.

      Those between the ages of 45 and 60 who want to join Be The Match Registry® are welcome to do so, but must join through our online registration process. You will be required to make a $100 payment at the end of the online process to cover the cost to join.

Leave a Reply

Your email address will not be published.


+ 7 = 16

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>